Almost $130,000 for treatment

Almost $130,000 has been raised to send five-month-old Ava Neville to New York for treatment, according to grandmother and Woy Woy Little Theatre member Ms Brenda Logan.

Ava currently suffers from the debilitating tuberous sclerosis, and a campaign had been started to raise enough money to send her and her family to New York, so that she could receive treatment.

The group were expected to fly to the USA on Friday.

"Understandably we are all a little nervous and frightened of what lies ahead," Ms Logan said.

"However, because of the generosity and fund raising, the huge cost involved is something we no longer have to worry about.

"Incredibly, we have almost reached our target of $130,000, which will certainly cover the cost of the initial testing, and hopefully the operation too, if the New York doctors should decide to go ahead.

Qantas has also agreed to supply the airfares.

"Despite still having at least three seizures a day and existing on very little sleep, Ava has a healthy appetite and is growing well," Ms Logan said.

Email, September 15 Brenda Logan, Woy Woy Little Theatre